What does that look like? Her eye blew up. "So many cells we cant count." Wow. She hasnt had that kind of eye appt since the initial diagnosis (age 2).
Now there are discussions with the pediatric rheumatologist & the uveitis specialist as to what's next. There are other drugs related to Remicade (called TNF Blockers) and some you may have heard of (PGA Pro Phil Mickelson uses Enbrel): such as Enbrel, Humira & Orencia.
The next drug she jumps to, we want it to have a great track record of conquering uveitis (arthritis in the eyes). Problem is... there arent a lot of studies out there.
The good news is, they are all SHOTS. Administered at home. No more mini hospital in our house, nurse half days, being grumpy & missing school....
Scary side is, will her body accept this new route, how long till it kicks in and now its up to US! (was a tad reassuring to have a nurse at the house to talk things over with).
We have a growing list of questions for both doctors & are contemplating going to Boston to discuss.
Charlotte has been on HOURLY eye drops since the 2nd day of school (GET TO KNOW US!) and the staff has been nothing short of angelic!! Her teacher, the nurse, the healthroom assistant, the secretaries, the principal... we couldn't ask for a more cohesive village helping our Tot when she's away from us. So much love for our elementary school educators....