Sunday, December 19, 2010

Sniffles come with....

Ah the immune suppressed child.... the sniffles and the "ahem" clearing of the throat every 2 seconds has become a constant around our house for the last month & a half. Charlotte can't shake it... it hasn't gotten worse, but it doesn't get any better.
So I should not have been surprised when we went to the eye doctor last week (she always gets seen before her next round of Remicade treatment) and she saw "one cell" in Charlotte's right eye.

We are not freaking out, this happened a year ago with Charlotte... and what's good to note... is when Charlotte isn't feeling well, where does the arthritis go for her? Her eyes...

Children with whacked out immune systems, when exposed to a virus, might have a little flare....and Charlotte's flares, evidently, as the pattern has been showing, are going to go to her eyes.
What's next? We see the eye doctor sooner than we normally would. We will visit her in 4 weeks rather than 10 (before the remicade treatment). Hopefully Charlotte can conquer her sniffles in 4 weeks & kick that cell to the curb....
Gotta say, have had several conversations with mom's lately about our "other children." And sometimes the guilt of not being in their "moment" when we are dealing with our sick kiddos gets to us. So we live with the guilt, try & remember to be in the moment but also cut ourselves some slack & remember that the other cherubs are learning a lot by living with a sick sibling. Here's a rainbow to that situation.
Charlotte's sisters were at the eye doctor and when Dr. Goodman shared the presence of the one cell, Charlotte's big sis Ellie asked, "Just one cell? What does that mean?" And Dr. Goodman explained it in SUCH a great way that Ellie continued talking about it on the way home & shared with other folks later....

Dr. Goodman explained, "The immune system has gotten the message that there's a virus that they need to fight, but there isn't a virus. (I said remember we call the white blood cells the army men because they have gotten the message they need to go fight a cold?) We don't want those white blood cells in the eye, there's definitely NOT a virus there. So we hope he doesn't invite his friends...."

Ellie really got that, could visualize it & talked about it with her little best friend the other night. Seeing the empathy, the understanding & the sharing can help relieve this Momma's guilt a tad... and hopefully having a sick sibling encourages our sweeties to be the change... to find cures & be activists in the future. Or little activists now!

Saturday, December 4, 2010

JIngle Bell Run 2010

Thank you to Tottie's Team representing at the Portland Arthritis Foundation Jingle Bell run on Sunday, December 5th.

Thank you to the veteran's who mark this their 4th year running or walking (My parents + sweet friends Lori & Courtney!)!

Thank you to those who made it their first year last year & are back for more! (O'Neill & Leask families, PHE Staff & families: Jill & Patti & Stephanie!)

And to the newbies - THANK YOU! We hope this will become your holiday tradition every year! Jingling all the way & celebrating mobility, health & the Holiday Spirit!

And for those of you reading in the Portland area ... Have I intrigued you? Would you like passes to the Nike Employee Store? Those are hard to come by & our Arthritis Foundation chapter rocks at enticing you to join us :) Let me know! I will ping you in July to sign up!

Thank you Tottie's Team! Have a GREAT race! Its not raining & its not snowing, this is a REALLY good year! Thank you so much!!