Sunday, December 19, 2010

Sniffles come with....

Ah the immune suppressed child.... the sniffles and the "ahem" clearing of the throat every 2 seconds has become a constant around our house for the last month & a half. Charlotte can't shake it... it hasn't gotten worse, but it doesn't get any better.
So I should not have been surprised when we went to the eye doctor last week (she always gets seen before her next round of Remicade treatment) and she saw "one cell" in Charlotte's right eye.

We are not freaking out, this happened a year ago with Charlotte... and what's good to note... is when Charlotte isn't feeling well, where does the arthritis go for her? Her eyes...

Children with whacked out immune systems, when exposed to a virus, might have a little flare....and Charlotte's flares, evidently, as the pattern has been showing, are going to go to her eyes.
What's next? We see the eye doctor sooner than we normally would. We will visit her in 4 weeks rather than 10 (before the remicade treatment). Hopefully Charlotte can conquer her sniffles in 4 weeks & kick that cell to the curb....
Gotta say, have had several conversations with mom's lately about our "other children." And sometimes the guilt of not being in their "moment" when we are dealing with our sick kiddos gets to us. So we live with the guilt, try & remember to be in the moment but also cut ourselves some slack & remember that the other cherubs are learning a lot by living with a sick sibling. Here's a rainbow to that situation.
Charlotte's sisters were at the eye doctor and when Dr. Goodman shared the presence of the one cell, Charlotte's big sis Ellie asked, "Just one cell? What does that mean?" And Dr. Goodman explained it in SUCH a great way that Ellie continued talking about it on the way home & shared with other folks later....

Dr. Goodman explained, "The immune system has gotten the message that there's a virus that they need to fight, but there isn't a virus. (I said remember we call the white blood cells the army men because they have gotten the message they need to go fight a cold?) We don't want those white blood cells in the eye, there's definitely NOT a virus there. So we hope he doesn't invite his friends...."

Ellie really got that, could visualize it & talked about it with her little best friend the other night. Seeing the empathy, the understanding & the sharing can help relieve this Momma's guilt a tad... and hopefully having a sick sibling encourages our sweeties to be the change... to find cures & be activists in the future. Or little activists now!

3 comments:

Amy Cunningham said...

Oooooooh this made me cry!!! I too have been feeling that nagging guilt that my other two get ignored, forgotten, left out? But you are absolutely right that they are learning something very special by living with a chronically ill sibling. It's a burden as well as an amazing gift from God. Thanks toots, have a VERY Merry Christmas Reeces :)

Deetipton said...

I feel the same way about the siblings. I think I have a decent balance going on now, but it took many years.

I also think that the way that you worded the first half gives people that don't know a good idea of what we all go through, as well as helping any newly diagnosed families that may read a good idea of what to expect.

I hope ya'll have a Merry Christmas! I hope ya'll have a chance to relax and not have to deal with any sickness or flares!

Amy Cunningham said...

So last night as I was laying in bed, a random thought popped into my head, as is normal for me. REECE is an acronym for your first names! DUH! I know that!!!! Ugh....pardon my moment of stupidity. Have a VERY Merry Christmas Cox family!! DUH.