In one week, I have learned of 3 new families around our community who's sweeties have acquired arthritis. At first my heart sinks, knowing the confusion & the sadness these parents are going through. I have been there. And then I get a little angry. Because even if I dont know you, I hate that you are going through what we went through at the beginning. The sadness, confusion, lack of control & the thirst for knowledge & stories of others. Then my anger gets quickly turned into productivity... because I cant stand the disease but I also have to have "some" control & that is the ability to help those who are helping find a cure!
CARRA - Pediatric Rheumatologists working together to find a cause & a cure. Every dollar given goes straight to research. My Tottie's Pretties headbands goes to this organization.
If you live around me, I will be sending you an email about walking & running in the Race for CARRA, happening September.
Arthritis Foundation - December 5th will be the Jingle Bell Run. Our favorite way to start the holiday season. Join Tottie's Team! http://portlandjinglebellrun.kintera.org/tottiesteam
Tonight is shot night. Some of these new families will start to understand the ritual of this night. Ours has evolved over the last 2 years. Here's our current ritual: Daddy gives the shot (change from me!) & he uses the numbing cream (she wanted it after watching our friend Ellie use it for her shot). And she has to have Ellie there to give her a hug while she gets the shot.
She holds on to Ellie TIGHT & Ellie loves to be the hugger. "Who loves you!? See? That wasn't a big deal, it didn't even hurt!" (Ellie is 7!) And then Daddy gives Charlotte a hot wheels car as a reward for holding still (she loves her cars!!).