Wednesday, August 5, 2009

A year off drops

This is the month to celebrate 1 year off of steroid eye drops for Charlotte. When uveitis appears, Pred Forte (steroid eye drops) are immediately started to curb the inflammation. Those drops did not work for Charlotte (even dosing hourly for weeks). That is why she went on Remicade & Methotrexate (started in March 08). She has had no flare ups in her eyes & the combination of Remicade & Methotrexate is a good combo for her, its doing its job! We will go 7-8 more months of Remicade & Methotrexate before we start to taper (a total of 2 years being on that combo).
Charlotte was getting Remicade every 4 weeks & now we are in our 3 dose of every 5 weeks. We will taper that to every 6 weeks after a 4th dosage. A little slow for the stretching of the intervals in our Ped. Rheumy's opinion. But we needed to go slower on that stretching only because if there had been a hiccup & she got a flare up, it would be back to square one. So i like to be a little more conservative, a little more cautious ...

Next month Charlotte starts preschool. She is excited, we are excited, she will have a BLAST with her friends & her sweet, adoring teachers. They are well aware of Charlotte's history, they were with us from the beginning (since Ellie was attending there when we discovered & went through the beginnings of the uveitis & the joints).
Are they ready for this girl?!?!?

And not to be a worry wart, but I am cautious because being at school also means being susceptible to virus's & bacteria (colds & chicken pox!). So that is also why i am a little slow & stretching out her successful Remicade intervals. She's entering a new phase in her life where she's open to more ... stuff! So we are taking our stretching slow & celebrating every ophthalmology visit, every "finish" of her Remicade!!! And we are counting down....

2 comments:

Andrea said...

Congratulations. She looks VERY grown up!

Lisa Wheeler Milton said...

I love these new pictures, especially in the black tee.

:)