Thursday, May 7, 2009

Are you planning your costume?

Getting ready for the 2009 CARRA COSTUME BALL! Just got these masks shipped from New Orleans for our poster photo shoot. 4 little girls with JRA will wear these masks to publicize our family fun costume event happening in October. Its a great time for the whole family to enjoy the spirit of the season, family games, food & lots of fun dancing & competitions!

October 17, 2009

My friend Laura & I started this event last year out of the drive to help heal our daughters. All the proceeds from this night will go to CARRA - Childhood Arthritis & Rheumatology Research Alliance: Pediatric Rheumy's in the US & Canada doing amazing research & clinical trials to find the cause & cure for Childhood Arthritis!

New this year will be the "Lara Blair Photo Booth" where you can get your family picture taken for $25 & receive a free 5x7!!

Yep.... thinking fall.... Send me an email at for me to remind you about the event closer to the date! We would love to see you!

Charlotte went to her Remicade treatment today. Its been a year now that she's been going every 4 weeks for these chemo treatments. Today was the first time we stretched it to 5 weeks. She did GREAT (according to Daddy who took her since I was on a bus w/ 2nd graders for a field trip). She wasnt happy to be there, like always, but after the initial poke, it was done & she did great! I think there is something to getting older, knowing that its really not an option no matter how much you act out, but the whole older & talking her trhough it, I think is helping.

Two of our friends didnt have great days having appts w/ Dr. Foster in Cambridge (read Jenna & Jacob - blogs are linked on the right hand side), so this disease continues to frustrate & anger.... and that's why I try & focus on the Costume Ball & want to sing, "Put on your Dancin Shoes!"

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