Thursday, May 7, 2009

Are you planning your costume?

Getting ready for the 2009 CARRA COSTUME BALL! Just got these masks shipped from New Orleans for our poster photo shoot. 4 little girls with JRA will wear these masks to publicize our family fun costume event happening in October. Its a great time for the whole family to enjoy the spirit of the season, family games, food & lots of fun dancing & competitions!

October 17, 2009

My friend Laura & I started this event last year out of the drive to help heal our daughters. All the proceeds from this night will go to CARRA - Childhood Arthritis & Rheumatology Research Alliance: Pediatric Rheumy's in the US & Canada doing amazing research & clinical trials to find the cause & cure for Childhood Arthritis!

New this year will be the "Lara Blair Photo Booth" where you can get your family picture taken for $25 & receive a free 5x7!!

Yep.... thinking fall.... Send me an email at carracostumeball@gmail.com for me to remind you about the event closer to the date! We would love to see you!

Charlotte went to her Remicade treatment today. Its been a year now that she's been going every 4 weeks for these chemo treatments. Today was the first time we stretched it to 5 weeks. She did GREAT (according to Daddy who took her since I was on a bus w/ 2nd graders for a field trip). She wasnt happy to be there, like always, but after the initial poke, it was done & she did great! I think there is something to getting older, knowing that its really not an option no matter how much you act out, but the whole older & talking her trhough it, I think is helping.

Two of our friends didnt have great days having appts w/ Dr. Foster in Cambridge (read Jenna & Jacob - blogs are linked on the right hand side), so this disease continues to frustrate & anger.... and that's why I try & focus on the Costume Ball & want to sing, "Put on your Dancin Shoes!"

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