Tuesday, October 7, 2008

Press Release


FOR IMMEDIATE RELEASE Contact: Erika e3cox@hotmail.com


FIVE CAMAS C.A.R.R.A. GIRLS HAVE A “BALL”
Small Town Supports CARRA: Childhood Arthritis & Rheumatology Research Alliance With a Costume Ball

Camas, WA – This is not too much like the story of Cinderella, but on Saturday, October 18th from 6:30-9:30, families will come together in costume to dance for a good cause and happy ending.

The 1st Annual CARRA Ball will take place at the Camas High School Auditorium, 26900 SE 15th Street. Tickets and directions are available online at http://www.carracostumeball.com/. Tickets are $25 per family. All proceeds will go directly to CARRA.

The organizers of this event are mothers of two of the Camas five girls with Childhood Arthritis, Laura XX and Erika X.

“We want to celebrate family, mobility and awareness, while taking advantage of the season,” said Erika. “We figure this is a great way to bring families together and raise money for the organization fighting to cure our daughters.”

“Besides,” adds Laura, “the reality is that when we are all in costumes, no one knows who is sick!”

This will be a night of great memories for everyone and family interaction from start to finish. Costumes are encouraged. DJ Denmark from RadioParties will provide wholesome and age appropriate music, group dance and games. There will be a raffle with items such as 2 nights at the beach, an American Girl Doll & much more. A hot dog cart will be on hand with food as well as a free espresso cart for the parents.

CARRA is an organization of Pediatric Rheumatologists from across the U.S. and Canada, working collaboratively to address critical research issues. They have come together to share treatment protocols and outcomes, and to conduct high quality clinical studies. Through collaboration and research, the CARRA organization will find solutions to the many questions about childhood rheumatic disease, which may ultimately lead to a cure.

Arthritis and other rheumatic diseases affect an estimated 300,000 children in the U.S. Many of these children live with chronic pain and take daily medication in the hope of controlling their illnesses. CARRA doctors are committed to finding the cause and cure for rheumatic diseases in children.


For more information or an interview, contact Erika XX at e3cox@hotmail.com or 123-456-7890.
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ATTACHED: PHOTOS, LINKS and TESTIMONAILS
PHOTOS
Photo 1: Girls in Costume for CARRA Costume Ball – 3 Camas girls struggling with the daily pain of arthritis
Photo Identification: Claire x, Charlotte xx, Addison xxx
Photo Credit: Lara Blair Images

Photo 2: CARRA Costume Ball – Charlotte x in costume. Charlotte recently visited a Dr. @ Harvard for her battle with the arthritis in her eyes.
Photo Identification: Charlotte x, age 3
Photo Credit: Lara Blair Images

LINKS
- http://www.carracostumeball.com/
- http://www.friendsofcarra.com/
- http://www.carragroup.org/
- http://www.arthritis.org/

TESTIMONIALS
Charlotte x (age 3) started limping on her 2nd birthday.

“We thought she had a sliver in her heal but there was no sliver & then one day she woke up with her knee swollen & refused to walk at all. Her pediatrician immediately drew blood & took x-rays,” recalls mom Erika x.

Charlotte was diagnosed with pauci-articular juvenile rheumatoid arthritis by Dr. Daniel Kingsbury, a pediatric rheumatologist at Emanuel Hospital.

“Dr. Kingsbury was able to drain Charlotte’s inflamed joints & give them a shot of cortisone. She was mobile again,” said Erika.

The arthritis that went to Charlotte’s eyes was harder to control. After 10 months of hourly steroid drops & several steroid IV pulses, the found medical cocktail that finally controlled the inflammation in her eyes were Methotrexate (a shot given at home) & monthly infusions of Remicade. Luckily for Charlotte, no damage has been done to her eyes during this past year.

Addison xxx (age 2 1/2) has a similar story with her joints, but at an even earlier age.

“At 18 months, it was hard to identify if Addison was still learning how to walk or if she indeed had a limp,” remembers mom Laura xxx.

“Addison’s arthritis affected the tendons around the bones, but treated just the same as a joint.” Laura said, “After her initial joint injections in the beginning of the year, we thought we were clear. But last month she had a flare up in fingers, toes & elbow. Now we feel that we are always on alert.”

Now both girls, ages 3 & 2 ½ are involved with their moms to do something to help the thousands of other children that live with the pain of arthritis. They have created a family fun event called the “CARRA Costume Ball” supporting Friends of CARRA.

Charlotte & Addison aren’t alone. There are 300,000 children in the US with arthritis, 5 of them, including Charlotte & Addison, live in Camas.



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1 comment:

Team Houston said...

Sorry we can't be there. We we were up to it.

Good luck and I hope you raise a lot of money.

~Michele