I hear my hubby downstairs washing the dishes as I am recollecting today's remicade day for Charlotte. Happy Anniversary to us :) We had ice cream tonight with the girls & celebrated 9 years!!
Today's remicade was so nutty, i didnt even THINK about documenting with pictures as i have for every other monthly adventure. Ooops...
We started out with an early morning getting down to the tv station to film a segment that will air Friday morning (october 18th) & will be online after it airs early in the AM. I spent some hours the night before making sure my talking points were buttoned up, succinct, pertinent & practiced in the car on the way into downtown portland this AM. I wasnt sure how comfortable I felt being in front of the camera when i really enjoy my past life of the PR girl prepping OTHER people..... but i think it went ok & hope that it comes across well..... I was overly prepped and felt very underprepped at the same time. Did I say enough, did i say too much, were my facts straight, did I encourage excitement for the Ball???
wouldnt take my PR advice. There was no smiling, she was classic Charlotte meeting a stranger, answering NO to every question. "Does she know she has arthritis?" "NO!" If you know & love Charlotte, it will make you laugh. If you dont know her....big sigh... I wonder how it will come across :) She's my little old lady in a 3 year old body. Dont mess with her in a dark alley, she will take you out :) :) :)
Is this what Charlotte looked like on TV today? you bet it was!!! Did EVERYONE Make a comment ALLLLLL day long from the restaurant, to nordstroms, to the hospital - of course they did!
Then a morning of breakfast & shopping before settling into the hospital. Breakfast at the Bijou where I went with my BFF 9 years ago that morning to eat breakfast before getting into my big cream poofy dress, meeting my sweetie, bawling my eyes out as the bagpipes played while i walked down the aisle, forgetting to kiss my dad out of nervousness & continue crying during my vows & ruining my makeup (cuz its what i do!).
Only 16 more remicades to go to fulfill our 2 year commitment (ha - its really not a COMMITMENT per say, but Dr. Foster's recommendation is 2 years).
So this Remicade day went like no other - because that's how they go - there is no cookie cutter day. We did the right arm and the IV went in like BUTTER!!!! Nurse Priscilla was amazing & she said that the right arm has a GREAT vein,we are going to continue using it till we hit scar tissue (ugh).
But then Charlotte wigged out. And I mean a complete out of body freakout. The iv was done, it was in "no more pokes" yet she was still wigging out. And the culprit: BENEDRYL. Kicking us, not letting the nurses put the stint & tape on, screaming, sweating, I thought she was going to pass out.
So we are going to forgo the benedryl for the next round, the Thanksgiving 08 round & see how she does..... on this day, she wigged, stopped, cuddled into Daddy & slept in his arms for 1.5 hours!
I appreciate our friends Dawn & Cindy for their camaraderie & support & LUNCH :) My dad surprised us too & came out & saw what this day was all about. He watched, asked a lot of questions as an ex-Army medic would & Ryan got to entertain him pointing out "my company owns that, we sell that & that & that...." oye vey! I have posted on here before about going into a hospital with Ryan.... :) :) :)
And this VERY full day of tv appearance, remicade, anniversary, Costume Ball.... is coming to a close. But let me get one more plug in about the Costume Ball before I say goodnight because its been my mission for several months now, & its my passion to DO something for Charlotte & this has been it....
The CARRA Costume Ball is almost upon us. I cant SAY in words how excited I am for this event & how its come together! I also cant speak highly enough about my co-director Laura, mom to 2 1/2 year old Addison (extended puaci jra) who's amazing organization, drive & dedication has made her a JOY to work with! We have already been talking about next year!! But SATURDAY first :) & then she & I will celebrate together with some spa time on Sunday. She is a Great Friend & great supporter, a great cheerleader & an amazing do'er! Thank You Laura!
The raffle is bountiful with amazing & FUN prizes!!! Our donors have been SOOO giving & kind!! And the dance... its going to be a blast! We have some girls coming from the local gymnastics/dance studio to perform in the middle for all the families - its just going to be so much fun! I look forward to meeting JRA families I talk to in email but haven't met, I am excited to see old friends from college, from work, that are coming that we never get to see often enough. This is a CELEBRATION night! Much like our wedding 9 years ago....
And you know what.... I just might cry!
Cuz its what i do :)
http://www.carracostumeball.com/ say gnight Gracie.... gnight!