Sunday, June 29, 2008

Tottie's Pretties

I am so happy to share fun & cute accessories with our little girlfriends & giving back to an organization that our family is so passionate about!

I am making ribbon & material wrapped headbands adorned with gemmed flowers & varied clips of bows & flowers. I call them Tottie's Pretties.

My goal with making these headbands & clips was to have fun, be creative, give something to my daughters that they love & share with other families for a good cause.

Headbands are $10 & clips are $5 & for every purchase made on Tottie’s Pretties, I give 50% to CARRA.

CARRA (Childhood Arthritis & Rheumatology Research Alliance) is an organization of Pediatric Rheumatologists from across the U.S. and Canada, working collaboratively to address critical research issues. They have come together to share treatment protocols and outcomes, and to conduct high quality clinical studies. Through collaboration and research, the CARRA organization will find solutions to the many questions about childhood rheumatic disease, which may ultimately lead to a cure.

They are near & dear to my heart since Charlotte’s diagnosis in the Fall of 2007. How is CARRA is helping our family directly? Charlotte takes a chemo drug called Remicade & goes to the hospital once a month for her IV treatment. Last month, the FDA came out with a study showing children on these drugs are getting cancer. So CARRA is working with the Arthritis Foundation to build a database of children to watch their progress & monitor the children on these chemo drugs. Charlotte has to take such a severe medication because the arthritis in her eyes is not able to be controlled with mere steroids or other anti-inflammatory drugs. We appreciate CARRA’s work on monitoring Charlotte & other children’s progress on these severe drugs.

In June, 10 families bought Tottie's Pretties.

23 headbands & 11 clips later & we have a donation to CARRA this month for: $142.50

THANK YOU SO MUCH FRIENDS!!!

About CARRA...
Arthritis and other rheumatic diseases affect an estimated 300,0000 children in the U.S. Many of these children live with chronic pain and take daily medication in the hope of controlling their illnesses. CARRA doctors are committed to finding the cause and cure for rheumatic diseases in children.

Many questions about childhood rheumatic disease remain unanswered, including: What is the cause? What are the best treatments? What are the long-term outcomes? How can damage be avoided? What is the cure?

CARRA is an organization of Pediatric Rheumatologists from across the U.S. and Canada, working collaboratively to address critical research issues. They have come together to share treatment protocols and outcomes, and to conduct high quality clinical studies. Through collaboration and research, the CARRA organization will find solutions to the many questions about childhood rheumatic disease, which may ultimately lead to a cure.

The Mission of the CARRA organization is to foster, facilitate and conduct high quality clinical research in the field of pediatric rheumatology aimed at improving the health outcomes of all children with rheumatic diseases.

If you have a headband color request or just see what new ones I have cooking up, email me & I would be happy to drop off the tote of Tottie’s Pretties to you!
Thank you again!!

1 comment:

ROSA E OLIVIER said...

Piú giú, in fondo alla Tuscolana...!?...passavo per un saluto!