Tuesday, June 17, 2008

Not a Fluke

After Charlotte's random dinner time park puke, we went home, washed up & went to bed.

She woke up the next morning w/ a fever & laid on the couch the entire day. We gave her fluids, but she didnt pee all day. I called the pediatrician & they said watch the fever, listen to your gut.

At 730, she seemed extra hot, my gut said head to the ER. We joined MANY others who needed help on a full moon evening.

We were getting checked in by a nurse when I said, "see this twitching? she did this in the waiting room 3x, as she fell asleep."

The nurse was silent as she watched Charlotte's eyes & I started to watch the nurse alarmed. Charlotte started to twitch more, then she went into a full on seizure.

DEFINITION: Febrile Seizure
Febrile seizures are convulsions brought on by a fever in infants or small children. During a febrile seizure, a child often loses consciousness and shakes, moving limbs on both sides of the body. Most febrile seizures last a minute or two (ours did).

Nothing gets you a room in the ER like having a seizure. I held her & they led me to a room where the nurses were on her like bees on flowers, & put the oxygen mask & moved me aside. They suctioned her mouth & started taking vitals.

She came too, after a few minutes.

While she was coming back (but wasnt herself at all - she was spacey, staring at the lights in the ceiling), they took blood, they took urine & temp. When she had the seizure she was at 104.8.

The ER doc didnt like it. He didnt like her cold feet, the fast temperature rise, the febrile seizure and bottom line "who Charlotte is" (meaning history & the big drugs she is on: Methotrexate .4ml sub-q weekly, Remicade IV every 4 weeks).

He decided a spinal tap was in order, he was looking for meningitus:
DEFINITION: Meningitis is an inflammation of the meninges, the membranes that cover the brain and spinal cord. It is usually caused by bacteria or viruses, but it can also be caused by certain medications or illnesses. Bacterial meningitis is rare, but is usually serious and can be life-threatening if it's not treated right away. Viral meningitis (also called aseptic meningitis) is relatively common and far less serious. It often remains undiagnosed because its symptoms can be similar to those of the common flu.

We tried to see if Charlotte would allow them to do it without sedation, but she was too aware & is too much of a little fighter. They needed to knock her out. They used: Ketamine which was put right into her IV & she closed her eyes immediately.

While we were waiting for the results of the spinal tap, they gave her a big dose of anti-biotics, just in case.

45 minutes later - it came back negative. We were free to go. Whew....

So... today at the pediatricians, he set my expectations that the fever could ebb & flow & with that, she possibly could have another seizure. So we are on Motrin & watching her super closely & trying to get her to drink liquids (harder than it sounds). At least she is a different girl today than yesterday, she is at least vocalizing her pain today (be careful what you wish for). her temp is down to 100.3, still a fever but no 104.8, whew.

We are treating this as a virus as the blood & spinal fluid continue to culture. If she still has a fever by Thursday (today is Tuesday), then we need to have her checked out again.

We welcomed Daddy home who enjoyed watching the US OPEN but was pretty distraught at the phone calls last night when he was stuck in SD & couldnt get out in anyway before this AM. I got Emma off (late!!!!) to celebrate w/ friends & teachers the last day of school, last day of 1st grade & since she is her Marmee's granddaughter, she cried :) We are going to celebrate her tonight at dinner. We are going to watch Charlotte closely & realize that we dont mess around w/ fevers for her, she might be prone to this in the future.

Muchas Gracias
Addison's mom, thanks for the push to call the pediatrician, smart call when I sometimes wonder what to think.
Cousin Laura, thanks for being a part of this adventure this week. Not what you expected on your time off from college, no shopping was done :( but you sure learned a lot about pediatric meds! Want to change your major?! :)
Cindy, FG #1, oh my... How do I say thank you in every language for dropping everything & racing to the ER to be with us, to be that 2nd set of ears, to talk & relieve the stress, to laugh & share. THANK YOU. I love you!
Mom, thank you for being available to the E's for bedtime & sit & be the caller go between for Ryan/us. What a late night.... Love you!

7 comments:

Laura said...

Oh my goodness!!!! I just checked in expecting to see a quick entry on the last day of school! Well, I am so happy little Miss Charlotte is feeling a bit better. I am not going to bug you w/ a call tonight b/c it sounds like much rest is in order. I will call tomorrow!!

Laura

Alia said...

Dear sweet Charlotte..... I am glad that you are feeling a teensy bit better. You poor thing!!!! Stay strong and stay brave we are all praying for you here in Minne....

Loudest Mom said...

Erika-

I SO feel your pain and panic over this one. I remember when Trey developed the ear infection from He*(* and they started throwing out meningitis, brain infection, etc. Terrifying. I'm glad Charlotte is doing o.k., and there are some really nasty bugs going around- hopefully this is the end of it for you. If not, just always trust your gut (as you did) :)

Happy summer-
Melissa

Lori said...

Oh, so sorry that you had such a scary night with Charlotte in the ER. Caden has had a fever over 105 when he was 18 months old and it was the scariest thing ever - no seizures, but such a scary state that their little bodies get in. In addition, when you see the nurses not liking it, it is so much scarier as a Mom. We are thinking of you.

Happy 1st Grade graduation to Emma too! How exciting!

McCarty said...

Erika! Carmen and I just knew all was not well when Emma was late. Bless her cuteness when she was crying on the bus as the teachers waved goodbye. I am so sorry for your night, but rejoicing with you that your hubby is home. I hope Charlotte heals quickly.

Lisa Milton said...

Oh poor Charlotte. I hope she is on the mend.

You're all in my thoughts...

(Lori just told me what happened. For some reason, the text didn't show up in my reader, just the cute picture.)

I'm so glad they gave her something for the spinal tap. Those things suck. Ug. Not good for your nerves either, I imagine. Let me know if there is anything we can do for you. :)

slp said...

Ugh, sorry to hear about the scare. I hope she recovers quickly.