Gathering information is beneficial to understanding symptoms & how they might relate to diagnosis. Here are websites to learn more about arthritis where explanations of symptoms can be found. These were noted on the website for the next drug Charlotte is about to utilize in her fight against uveitis (arthritis of the eyes). More on our next steps in the following blog.
They didnt mention a small (but growing), newer organization, one that I will be working to raise $ & awareness for (more to come!):
Childhood Arthritic & Rheumatology Research Alliance
CARRA is a network of pediatric rheumatology clinics and centers that develop and perform high quality clinical research in the field of pediatric rheumatology. The Mission of the alliance is to foster, facilitate, and conduct high quality clinical research in the field of pediatric rheumatology aimed at improving the health outcomes of all children with rheumatic diseases.
And now the ones that they DID mention...
The Arthritis Foundation www.arthritis.org
The Arthritis Foundation is the only national not-for-profit organization that supports the more than 100 types of arthritis and related conditions with advocacy, programs, services, and research. There is a section of the Arthritis Foundation website that is devoted exclusively to rheumatoid arthritis and offers information about treatment, research, causes, and diagnosis. In addition, the site provides links to up-to-date articles about RA, including the impact of diet and lifestyle, new developments in treatment, and managing symptoms.
Arthritis National Research Foundation (ANRF) www.curearthritis.org
ANRF provides funding for highly qualified researchers associated with major research institutes, universities, and hospitals throughout the country seeking to discover new knowledge for the prevention, treatment, and cure of arthritis and related rheumatic diseases. The site provides clinical trials information and a bibliography.
Hospital for Special Surgery (HSS) www.hss.edu
With the largest group of rheumatologists in the United States, HSS is a world leader in the research and treatment of rheumatic disease. This site provides tips on self-care and medication, support and educational programs, and information on RA research.
A subsidiary of Aetna, InteliHealth provides information on rheumatoid arthritis and healthy lifestyle tips. More than 150 top healthcare organizations contribute to InteliHealth's content, including the National Institutes of Health and the Harvard Medical School.
The Johns Hopkins Arthritis Website www.hopkins-arthritis.org
This site provides interactive, educational information for healthcare professionals about RA. It features a "Patient's Corner" with lifestyle information.
Mayo Clinic MayoClinic.com
Mayo Clinic Health Solutions' award-winning consumer website offers health information and self-improvement tools. MayoClinic.com's medical experts and editorial professionals bring you access to the knowledge and experience of Mayo Clinic for all your consumer health information needs, from cancer, diabetes, and heart disease to nutrition, exercise, and pregnancy.
National Institutes of Health - Medline Plus
This site offers information and links to various resources about rheumatoid arthritis symptoms, treatment, research and disease state.
Medicinenet.com provides comprehensive clinical information about rheumatoid arthritis authored by physicians for a patient audience. The site also includes patient stories and links to online articles about RA.
National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) www.niams.nih.gov
NIAMS is a division of the National Institutes of Health that has arthritis as a primary focus. This site functions as an information clearinghouse and features useful online handouts on arthritis.
National Library of Medicine www.nlm.nih.gov