We saw our opthalmologist today & here's my recap to our pediatric rheumatologist:
Great news Dr. Kingsbury! Charlotte responded to treatments!
Both eyes showed Zero trace – nada - nothing!!!! I had her repeat that in different ways! Whew... One step forward.
Drops: Goodman dropped the topical eye drops to every other hour.
Oral: We did 5 ml’s this AM. She said its up to you how you want to handle the oral moving forward.
MTX: Next shot is Monday, that will be week 5. Remind me again when we can hopefully see it kick in – 6-8 weeks or months? (I thought weeks, Goodman thought months)
Next Eye Check Appointment:
She said we could come & see Julie Yu in 1.5 weeks, didn’t think that it would make much of a difference to come in a week versus a week & ½. However, we can’t get in for 2 weeks (the 15th - so a difference of 2 days - hopefully wont make a difference). Let me know if you think since we can’t make the 1.5 week work, & its 2 weeks, if Charlotte should see her next week & THEN the following week (every week instead of every other)? Did that make sense?
Ryan & I are SO happy she responded to the treatment. One step at a time! Now we shift the focus to weaning her off the steroids & keeping the inflammation at bay.
Whoo hoo! Good news! Let us know your thoughts! Best, Erika