Dr. Stephen Foster responded too! I am shaking right now... I am just so pleased they both responded today. Havent even gone to talk to Ryan about it... headed downstairs to talk this over!
From Dr. Foster:
Dear Ms. Cox:
I am very sorry that you’ve been dealt this hand. You have your work cut out for you, and a long row to hoe. But staying in the fight is very, very worth it; you can prevail, with your daughter having a lovely life as a result and you responsible for making that happen.
Couple of questions:
Has she learned to take a vision test, and if so, what is the vision in each eye?
Has she learned to cooperate with the slit lamp examination, and if so, what grade of inflammation (cells in the anterior chamber) were present in each eye last visit?
Methotrexate takes time to begin to have any effect, sometimes up to 3 months. If there is severe inflammation now, the only things that can “put out the fire” quickly are intravenous SoluMedrol and in some instances intravenous Remicade.
I would be pleased to consult and then try to collaborate with the doctors at home by e-mail going forward in time.