Tuesday, November 27, 2007


Before Charlotte’s diagnosis, I had no idea that arthritis affected so many = more than 46 million Americans, including 300,000 children (+ add Charlotte to that number). Our Dr. said great things are happening with research & he hopes for a cure in Charlotte’s lifetime. We believe that can truly happen!


Sunday is the JINGLE BELL Walk for Arthritis in downtown Portland. Would you like to join our family & walk with us? There’s still time to register if you are available. Your love & support of Charlotte & our family is amazing, humbling & SOOO appreciated! We know how sacred Sunday morning is with your families & your activities so we want to extend the invitation but also understand schedules!! (Absolutely understand!)!


If you can join us, there’s still time! Join Tottie’s Team at:
http://portlandjinglebellrun.kintera.org/faf/search/searchTeamPart.asp?ievent=245730&lis=1&kntae245730=A0EBEF1461204956ABB7EB5B461D48EC&team=2659176

Don’t worry about the details besides getting downtown on Sunday morning J I am going to pick up t-shirts, bibs & the important jingle bells (!!!) on Friday & would distribute them to you that afternoon.


The 1 mile fun run for kids starts at 830 & the 5K starts at 8:50 AM. Come dressed to compete or get MERRY! There will be people in costumes; this is a festive celebration & an opportunity to bring awareness to those who are affected by Arthritis, which is the leading cause of disability.


Thank you so much for your treasured time & love! You mean so much to us!!! Hope to see you soon!

Saturday, November 24, 2007

Happy Thanksgiving


Its Saturday, & we just put these very energetic girls to bed. A week of family, food & fun has wound these girls up for the holidays! They played a follow the leader game tonight running around upstairs while laughing their heads off! The leader? CHARLOTTE ANN! That little tiger led the older two on a rampage!


We had a WONDERFUL holiday on Thursday w/ my aunt & uncle & cousins & parents here. The turkey was YUMMY & those cooking classes at Williams-Sonoma paid off. I think the key was the compound butter between the skin & the turkey because the flavor of those spices were amazing. There weren't many leftovers which is a great sign! Everyone brought something which is fun & yummy & it was a great time just sitting around the table, eating & talking. Emma wanted to go around the table to say what we are thankful for & i was thankful for her especially at that moment to initiate the idea!

Emma: I am thankful for my family
Ellie: I am thankful for trees
Now Ryan & i are watching football & getting psyched for civil war this weekend since the ducks are on their 5th string quarterback, the Beavs might have a chance at civil war! I am optimistic we have a chance with our defense looking GOOD & their offense really beat up right now. We are tied right now... so a win could be sweet - but its at Autzen so that lowers the chances right there. So bummed for the Huskies tonight that they lost to WSU! AT HOME!?!??! Everyone was there tonight & it would have been a fun win for all of them to watch - sorry :( What happened?!
Well i am off to search for some cute & unique stocking stuffers. One of my favorites is the all natural candy canes made by Hammond's Candies in Denver Colorado. They are big, yummy, beautiful & come in all natural fruit flavors which is a big hit for my anti "spicy" peppermint girls. They like the lemon, grape, cherry, strawberry & orange. one of each comes in a pack for $15 (for 6), so each girl gets one big natural yummy candy cane in the stocking! And for the candy bowl to look, not touch, they make beautiful natural ribbon candy & natural mint pillows. Check them out- they are great! BTW - natural means containing natural colors & flavors!

Sunday, November 18, 2007

Jingle Bell Run/Walk - December 2nd in Portland

Bells will be ringing on December 2nd for Charlotte Ann Cox! "Tottie's Team" will be joining the Arthritis Foundation in their annual "Jingle Bell Run", Sunday morning of December 2nd. We would love to have you join us!



Charlotte was diagnosed with Juvenile Rheumatoid Arthritis when she turned two (9.24.07). She has it in both knees & was recently (11.14.07) diagnosed with EYE-Ritis, meaning that it has flared up in her eyes & the treatment is an hourly steroid eye drop for 3 days & then continuing for a week.



Watching Charlotte with this auto-immune disease as she is just discovering her abilities as a toddler, has been heartbreaking. But with her recent treatment at Emmanuel Children's Hospital by the pediatric rheumatologist, she has been a new girl, being able to wake up limber, not stiff, & jumping/running all throughout the day. Before we were spending our mornings in my arms or sitting at the breakfast table not wanting to get down, not being forced to walk. We would spend time in LONG hot baths to help ease the pain. Now, since her treatment (a steroid shot to the knee joint), she's a new girl! its fantastic!



So it makes us more determined than ever to want to help find cures & help those with this disease. Its devastating to children, let alone to adults. It's debilitating physically & mentally. We pray there is a cure in Charlotte's lifetime! Being a part of this event helps us feel one step closer to that goal! Join us!!